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Project Access | Home-based learning & therapy services for children with rare diseases


Children with rare diseases form a minority in the society and often receive minimal attention & resources. Many of these children have life threatening rare diseases but due to a myriad of reasons, some may still have been undiagnosed or awaiting appropriate medical support, and the financial strain of multiple medical intervention can take its toll. The fortunate few who are able to receive formal treatment & therapy have to be home-based, missing out on access to learning and wellness programs that kids their age usually enjoy at learning centres or schools.

In light of this, Kidspace Learning Place – a specialised supported learning and enrichment centre for children and youths with special needs, is collaborating with The exhale group, a social enterprise focusing on complementary therapy, to improve access to specialised home-based programs for the children with rare diseases. The main beneficiaries of this pilot project will be members of the Rare Disorders Society (Singapore) (RDSS). This is a home-based program and the areas of learning and therapy will be tailored to the needs of each child.

Programs offered
Kidspace will offer learning support and specialised enrichment programs for children with special learning needs in the comfort of the home. Program include: supported learning (language & literacy including phonics, reading, writing, numeracy & math and writing), cognitive skills, communication, aesthetics (art, music) and motor skills training. exhale will be providing bodywork related therapy work like myofascial massage & supported movements to improve range of motion & psychomotor skills, as well as complementary treatment like reiki.

This pilot program will aim to reach out to children from 8 – 10 families who require and will benefit from home-based support services, providing them twice weekly home-based programs for a period of 10 weeks.

Take the next step!
We are targeting to raise a sum of $20,000 in support of this pilot project. This sum will allow us to send specialists to conduct home-based learning support and therapy programs for the children. We seek your kind generosity towards this cause which will go a long way in enriching the lives of these children. Any amount is welcome, as little drops of water make the mighty ocean!  
[UPDATE: We have closed the first round of funding and kickstarted the pilot phase of the program. We are in the midst of conversations to extend this program to more special need kids in 2017. If you wish to find out more, please email connect@exhale.com.sg

Background
Rare Disorders Society (Singapore) RDSS is a charity initiated by parents of children with LSD (Lysosomal Storage Disorder). Established in 2011, it aims to create awareness on various life threatening rare diseases. Their objective is to improve the lives of patients and their families who have been diagnosed with a rare or ultra-rare disease.

RDSS is currently the only organisation focusing and supporting rare disease patients in Singapore, including those undiagnosed cases. The Society does not receive financial help from the Government or Community Chest and has been raising funds on its own to finance the various programmes and activities for the benefit of its members.

More about RDSS here www.rdss.org.sg

Kidspace Learning Place | www.kidspace.com.sg  facebook @KidspaceLearningPlace
The exhale group | www.exhale.com.sg facebook @exhale.bodywork